What the study found
Patient and public involvement (PPI) panel members, all of whom had lived experience of having a neurodivergent child, were involved in supporting the study in several ways. Their roles included advising on participant communication, study design, and data analysis.
Why the authors say this matters
The abstract does not state a specific broader implication or significance beyond describing the PPI contribution. The authors note that members of the PPI panel are included as co-authors to acknowledge their contributions.
What the researchers tested
This study was nested within the OPTIMA trial. The PPI panel co-produced the interview schedule and participated in transcript analysis using a thematic framework approach.
What worked and what didn't
The abstract says the PPI panel provided ongoing support and took part in both study design and analysis. It does not report comparative outcomes, effectiveness measures, or anything that did not work.
What to keep in mind
The available summary is limited to the abstract, which describes the PPI process but does not provide study findings about parents' experiences or the trial outcomes. Limitations are not described in the available summary.
Key points
- The study was nested within the OPTIMA trial.
- PPI panel members had lived experience of having a neurodivergent child.
- The panel advised on participant communication, study design, and data analysis.
- The PPI panel co-produced the interview schedule and joined transcript analysis.
- The abstract does not report outcomes or comparative results.
Disclosure
- Research title:
- PPI panel members co-produced study methods and analysis
- Authors:
- Ellen Hedstrom, Katarzyna Kostyrka‐Allchorne, Claire Ballard, Naomi James, Hannah Wright, David Daley, Cris Glazebrook, Jana Kreppner, Claire Cattel, Douglas Gordon, Natalie Gordon, Tessa Tuttlebee, Edmund Sonuga‐Barke
- Institutions:
- University of Southampton, Queen Mary University of London, Florence Nightingale Foundation, Isle of Wight NHS Trust, University of Nottingham, Institute of Mental Health, Nottingham Trent University, King's College London, Aarhus University, Aarhus University Hospital, University of Hong Kong
- Publication date:
- 2026-01-28
- OpenAlex record:
- View
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